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SITUATED EXPERIENCES
1
Situated Experiences:
A Qualitative Study of Day-to-Day Life and Participation of Adolescents and
Young Adults with a Spinal Cord Injury and their Caregivers
By Carol Haywood
A Dissertation Presented to the
FACULTY OF THE GRADUATE SCHOOL
UNIVERSITY OF SOUTHERN CALIFORNIA
In Partial Fulfillment of the
Requirements for the Degree
DOCTOR OF PHILOSOPHY
(OCCUPATIONAL SCIENCE)
May 11, 2018
Object Description
| Title | Situated experiences: a qualitative study of day-to-day life and participation of adolescents and young adults with a spinal cord injury and their caregivers |
| Author | Haywood, Carol Eileen |
| Author email | chaywood@usc.edu;cehaywood@gmail.com |
| Degree | Doctor of Philosophy |
| Document type | Dissertation |
| Degree program | Occupational Science |
| School | School of Dentistry |
| Date defended/completed | 2018-03-08 |
| Date submitted | 2018-05-09 |
| Date approved | 2018-05-09 |
| Restricted until | 2019-05-09 |
| Date published | 2019-05-09 |
| Advisor (committee chair) | Lawlor, Mary C. |
| Advisor (committee member) |
Pyatak, Elizabeth Leland, Natalie Henwood, Benjamin |
| Abstract | The greatest proportion of spinal cord injuries (SCIs) occurring each year in the United States is among adolescents and young adults (AYAs). Disabilities resulting from neurological effects and secondary sequelae can contribute to diminished participation in meaningful activities within home and community settings and necessitate attention across the lifespan. Still, much of research and clinical care is organized for pediatric or adult populations, with limited attention to developmental processes situated in between. To this end, the overarching objective of this study was to explore daily life experiences after SCI for AYAs and their caregivers, with a specific focus on understanding interrelationships of injury effects, participation, identity, and development. A qualitative design was employed using narrative and phenomenological methods to capture a range of experiences—from mundane to extraordinary. Individuals were recruited from rehabilitation hospitals and community settings throughout Los Angeles County, and a diverse cohort of 17 participants enrolled: nine AYAs and eight of their caregivers. A multi-level analytic framework working within- and across-cases revealed ways in which experiences of participation were deeply situated within personal knowledge and beliefs, home and family life, community cultures, social and historical circumstances, and physical environments. Four primary, interrelated themes are presented: the significance of embodied experiences, multiple perspectives and caregiving, participation, and vulnerability. Some findings connect specifically to effects of SCI and secondary complications, while others have broader salience with development, disability, interpersonal relationships, and human experience. Across the life course, individuals come to know themselves and their environments through experiences. Adolescents and young adults are particularly charged with solidifying their identities and plotting goals for future roles and activities. Therefore, changes in abilities and activities during this time can have long-term effects. Perspectives of AYAs with a SCI and their caregivers exposed implications of existing gaps in knowledge as they contribute to participation, the structure and goals of rehabilitation services, and transitions to community life after SCI. Further research is indicated for development of rehabilitation services that attend to personal and developmental needs and expand beyond treatment of the individual to include interactions with caregivers and broader communities. |
| Keyword | adolescent; young adult; caregivers; spinal cord injuries; qualitative research; personal narratives; phenomenology |
| Language | English |
| Format (imt) | application/pdf |
| Part of collection | University of Southern California dissertations and theses |
| Publisher (of the original version) | University of Southern California |
| Place of publication (of the original version) | Los Angeles, California |
| Publisher (of the digital version) | University of Southern California. Libraries |
| Provenance | Electronically uploaded by the author |
| Type | texts |
| Legacy record ID | usctheses-m |
| Contributing entity | University of Southern California |
| Rights | Haywood, Carol Eileen |
| Physical access | The author retains rights to his/her dissertation, thesis or other graduate work according to U.S. copyright law. Electronic access is being provided by the USC Libraries in agreement with the author, as the original true and official version of the work, but does not grant the reader permission to use the work if the desired use is covered by copyright. It is the author, as rights holder, who must provide use permission if such use is covered by copyright. The original signature page accompanying the original submission of the work to the USC Libraries is retained by the USC Libraries and a copy of it may be obtained by authorized requesters contacting the repository e-mail address given. |
| Repository name | University of Southern California Digital Library |
| Repository address | USC Digital Library, University of Southern California, University Park Campus MC 7002, 106 University Village, Los Angeles, California 90089-7002, USA |
| Repository email | cisadmin@lib.usc.edu |
| Filename | etd-HaywoodCar-6323.pdf |
| Archival file | Volume34/etd-HaywoodCar-6323.pdf |
Description
| Title | Page 1 |
| Full text | SITUATED EXPERIENCES 1 Situated Experiences: A Qualitative Study of Day-to-Day Life and Participation of Adolescents and Young Adults with a Spinal Cord Injury and their Caregivers By Carol Haywood A Dissertation Presented to the FACULTY OF THE GRADUATE SCHOOL UNIVERSITY OF SOUTHERN CALIFORNIA In Partial Fulfillment of the Requirements for the Degree DOCTOR OF PHILOSOPHY (OCCUPATIONAL SCIENCE) May 11, 2018 |
